Hey guys, So I recently posted this on my Instagram page... ( I am an insta addict)
And the response was amazing, I am so happy to share my story, other stories and get the message out there that stomas really aren't as scary as you think.
Basically my point was... I've had so many people always say to me... "Oh thank god you can have your stoma reversed" ... yes I can, yes in the future I might. But right now quality of life & happiness are much more important to me than what I look like. Yes, sometimes I look in the mirror and feel fat or ugly or disgusting but most days I look at myself and thank my "willy" for giving me opportunities giving me strength when there was only ever tiredness before, being able to gain weight and feel happy... yes I gain. With UC and Crohns you can lose so much weight, I couldn't keep any weight on I would go to the toilet over 50 times a day (not an exaggeration) as many of you know, I would be told I look awful by people who barely knew me but thought it was acceptable, I was told I looked like a boy because I lost whatever boobs I had. Not getting enough nutrients it affected every other part of my body such as my teeth, skin and toes. Not being able to walk along a beach freely and not worry about finding the nearest toilet 24/7. Little things like eating a meal and not rushing to the loo half way through. Not missing a simple thing like seeing my niece or nephews blow out their birthday cake candles..... Yes there are downsides to my ileostomy... rashes.... miscarriages.... ectopic pregnancy from scaring or the most recent a stoma infection. But before you assume its a bad quality of life or gross having a shit bag on my hip maybe you'll realise the crap before it. A reversal takes time and focus and all your strength yet again and for now I'm so happy not fighting against my own body. Enjoying it. Living life. We don't have long so stop the judging and start being positive. The majority of people who contact me everyday are only ever upset because of what someone has said to them. Love don't hate, don't judge, respect everyone! Oh and if your squeamish I totally get that! me too. But some people aren't as lucky to have the option I do. Besides its good to be different.
LOVE TO YOU ALL. XOXO
Hey, Just a little bit about myself, I had Ulcerative colitis for 7 years, and now I've got an ileostomy bag. I'ts changed my life for the best, and I'm finally being the 23 year old I should be.